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Palliative Care Co-ordination: Core Content

This information standard specifies the core content to be held in electronic palliative care co-ordination systems (EPaCCS) and supports NHS England's objective to increase the use of technology to help people manage their health and care.

About this standard

Owner
NHS Digital
Status
Active
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Active standards are stable, maintained and have been assured or endorsed for use by qualified bodies.

Standards in development are APIs or API standards in alpha or beta, meaning they are available for use but are still in progress and may change.

Deprecated standards are older versions of a standard which are being phased out.

Retired standards are not being maintained and should not be used.

Standard type
  • Data definitions and terminologies
Show definitions of standard types

Record standards define what information to collect and how to format it, for example when registering a new patient.

Data definitions and terminologies define the format of individual data items so they can be consistently represented, for example dates or medication names. Reference sets and controlled lists are also included.

Technical standards and specifications specify how to make information available technically including how the data is structured and transported.

Information codes of practice are legal or best practice guidelines on how information should be handled.

Contact details
standards.assurance@nhs.net

Link to standard

Documentation
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Topics and care settings

Topic
  • Key care information
Care setting
  • Community health
  • Hospital
  • GP / Primary care

Dependencies and related standards

Dependencies

No known dependencies

Related standards
  • ISB 1500-1508: Common User Interface standards for entry and/or display of: patient name, address, telephone number, sex and gender, NHS number; date; time; patient banner
  • ISB 0129 Clinical Risk Management: its Application in the Manufacture of Health IT Systems
  • ISB 0160 Clinical Risk Management: its Application in the Deployment and Use of Health IT Systems
  • ISB 0149-02 NHS number for secondary care
  • ISB 0149-01 NHS number for general practice
  • ISB 1552 & 1553 Read Codes
  • ISB 0034 SNOMED CT
  • ISO/IEC 27001:2005 Information technology – security techniques – information security management systems – requirements
  • ISB 0090 Organisation Data Service (ODS)

Other related professional standards include:

  • End of life care for adults quality standard (NICE). November 2011
  • NMC Code: Professional standards of practice and behaviour for nurses and midwives. NMC (2015)
  • Academy of Medical Royal Colleges record keeping standards for patient handover and hospital discharge
  • Standards for the clinical structure and content of patient records. Academy of Medical Royal Colleges and HSCIC. July 2013
  • NHS improving quality guidance and training materials
  • Cancer outcomes and services dataset (SCCI1521)
  • Community information data set (SCCI1510)
  • Palliative care clinical data set (SCCI2036)

Assurance and endorsements

Reference code for standards issued as requirements in England
SCCI1580
Quality assurance

This standard has been approved by the Standardisation committee for care information (legacy) and published as an information standard notice (ISN).

Endorsements

Not applicable

Page last updated: 24 August 2023